John Owen’s Adventure Launches Updated Website for 2012

FOR IMMEDIATE RELEASE
Cleveland, Ohio, United States of America (Free-Press-Release.com) January 2, 2012 -- FOR IMMEDIATE RELEASE CONTACT: Jennifer Dumm
John Owen’s Adventure
(440)230-1555
jen@joainc.org
www.joainc.org

John Owen’s Adventure Launches Updated Website for 2012
JOAINC.org has New Content, Easier Navigation to Ring in the New Year

North Royalton, OH – John Owen’s Adventure (JOA), a non-profit dedicated to raising research dollars and awareness for the fatal genetic illness, Duchenne’s Muscular Dystrophy (DMD), has redesigned their website and updated content for easier navigation. For details visit www.joainc.org.

JOA strives to provide members of the community with current information and resources regarding DMD. Visitors can expect to learn about John Owen and his family, other organizations dedicated to derailing DMD, volunteer opportunities and much more.

In JOA’s commitment to finding a cure for the thousands of boys suffering from DMD, the organization hosts an annual Picnic in the Park, attracting thousands of families, and several smaller fundraisers throughout the year. These efforts have put more than $145,000 in the hands of researchers since JOA was established in 2008.

JOA was formed by Tony and Jen Dumm of North Royalton, OH and is named after their 7-year-old son John Owen who battles DMD. All proceeds are donated to the MDA and Parent Project Muscular Dystrophy, both of which work tirelessly to find a cure for DMD.

“We are proud to have contributed to research for DMD and plan to continue surpassing our goals. Every day we are closer to a cure, but time is running out for John Owen and thousands of other boys,” said Tony Dumm. “Join our fight to derail DMD by donating, volunteering or by simply reading our website and sharing our story.”

DMD is 100% fatal. DMD progressively wastes muscle and causes muscle weakness. It begins with microscopic changes in the muscle. As muscles degenerate over time, the boy's muscle strength diminishes. With DMD, ultimately the heart muscle will stop working. Typically diagnosed between four to seven years, the seemingly ‘normal’ boy will show signs of weakness getting up from the floor and walking up stairs. Slowly his muscles will limit his ability to walk; once wheelchair bound, his lung muscles will weaken, his spine may be affected and slowly his muscles will atrophy. Don’t let the word slow fool you, before most of us got our first ‘real’ job, these boys heart muscle will join the rest of his muscles and slow to a halt. The inability to make dystrophin is the cause of DMD. The gene which resides in the X chromosome never sends the message to the brain. Therefore, the boy’s muscles never get the vital life message to thrive. DMD is usually only found in boys since boys have one X. For more information on JOA visit www.joainc.org.
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Duchenne     muscular dystrophy