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Obama's Visit to Minnesota will not lead to postponement of Sickle Cell...
Obama's Visit to Minnesota will not lead to postponement of Sickle Cell Conference
President Barrack Obama's visit to Minnesota on Saturday will not lead to postponement of the 3rd Minnesota Sickle Cell Disease Conference with a theme centered around healthcare finance
FOR IMMEDIATE RELEASE
(Free-Press-Release.com) September 11, 2009 --
Saint Paul, Minnesota 10.00am: President Barrack Obama's visit to Saint Paul, Minnesota on 12th September 2009 will not lead to postponement of the 3rd Annual Minnesota Sickle Cell Disease Conference. The Sickle Cell Disease conference theme this year is focused around healthcare payment and streamlining care obtained from providers.
Obama's Visit to Minnesota will not lead to postponement of Sickle Cell Conference
Welcome visit Our WebSite:
http://scdam.org Speakers at this year's events include Bonnie Jean Smith, an author, parent advocate, mentor for families with children with health disabilities, and Wendy Ringer, another parent advocate. Both speakers are of the PACER Center in Bloomington Minnesota. Other speakers at the conference include Abdulahi Sheikh or the Minneapolis Urban League, Elizabeth McDonough of the Hematology/Oncology Service of Children's Hospitals and Clinics of Minnesota and Dawn Lorenz of Psychological Services, Children's Hospitals and Clinics of Minnesota.
President Obama's visit comes at a time that many families affected by sickle cell disease experience refusal of coverage of some aspects of their care and thus many of these children suffer inadequate care despite having purchased insurance. At the end of the conference, the organization will produce a statement which will be directed at discriminating HMOs and Insurance companies as well as legislators and other government officials.
About Sickle Cell Disease
Sickle Cell Disease is an inherited genetic condition characterized by severe bone pains, chronic anemia and repeated serious infections. The disease is inherited from both parents who may be carriers or affected. Diagnosis is through Newborn Screening and care is provided by regular health checks, blood transfusions and hydroxyurea. Bone marrow transplant for the most severe cases is still at an experimental level, even though national clinical trials are currently underway.
About Sickle Cell Disease Advocates of Minnesota, SCDAM
The Sickle Cell Disease Advocates of Minnesota (SCDAM) was formed to improve the quality of life for people living with Sickle Cell Disease by creating awareness, providing support and finding resources. We have operated as a volunteer-based organization since 2003.
More information can be found online at http://scdam.org
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