To Benefit Hunter's Hope Foundation & U of R Neuromuscular Disease Center
United States of America (Press Release) May 12, 2008 --
We will be hosting along with the Golden Benefit committee and Mrs. New York America the Mark Farruggia 11th Annual Golden Benefit Charity Golf Classic and Pride of New York Wine & Cheese tasting Event &Dinner on July 19, 2008 for Hunter’s Hope Foundation and Neuromuscular Disease Center at the University of Rochester Medical Center at Conesus Golf Club, Conesus, New York. Enclosed is a list of sponsorship opportunities for the Golden Benefit Charity Golf Classic & Dinner. We would appreciate your participation as a golfer, dinner guest, company sponsor or gift-in-kind sponsor to raise money for both of these fine groups. $85 per player includes 18 holes of golf w/cart lunch dinner and a whole lot more. $30 per person for Pride of NY Wine & Cheese & Dinner event.
Mark started the Golden Benefit Charity Golf Classic because he had his life altered by Charcot-Marie-Tooth or CMT, is the most commonly inherited neurological disorder, affecting 1 out of 2,500 people or approximately 150,000 Americans. CMT is found world-wide in all races and ethnic groups. It was discovered in 1886 by three physicians, Jean-Martin-Charcot, Pierre Marie, and Howard Henry Tooth.
Hunter’s Hope Foundation was established in 1997 by Pro Football Hall of Fame member and former Buffalo Bills Quarterback, Jim Kelly, and his wife, Jill, after their infant son, Hunter, was diagnosed with Krabbe Leukodystrophy, an inherited, fatal, nervous system disease. The Foundation is the Kelly's life long commitment to increase public awareness of leukodystrophies as well as to increase the likelihood of early detection and treatment. Their ultimate goal is to raise money to fund research efforts, identify new treatments, therapies, and a cure for Krabbe and other leukodystrophies.
The Neuromuscular Disease Center at the University of Rochester Medical Center offers state-of-the-art comprehensive care to over 4,500 patients affected by neuropathy, ALS, muscular dystrophy, myasthenia gravis, and other neuromuscular disorders. The Center strives to provide patients and their families with the tools, resources, and emotional support they need to understand and meet the challenges of their diseases so they can live their lives to the fullest. Physicians and scientists at the Center are actively involved in research to uncover the mysteries of these neuromuscular disorders and to develop new treatments.
Checks made out to Mark Farruggia Golden Benefit Charity Golf Classic can be sent to:
Mark Farruggia Golden Benefit Charity Golf Classic
P.O. Box 55
3446 Retsof Road
Retsof, New York 14539
If you have any questions contact us at 585-519-1917 or www.goldenbenefit.org. On behalf of the hundreds of families that Hunter’s Hope Foundation and Neuromuscular Disease Clinic at the University of Rochester Medical Center serves, thank you for your support.
Mark started the Golden Benefit Charity Golf Classic because he had his life altered by Charcot-Marie-Tooth or CMT, is the most commonly inherited neurological disorder, affecting 1 out of 2,500 people or approximately 150,000 Americans. CMT is found world-wide in all races and ethnic groups. It was discovered in 1886 by three physicians, Jean-Martin-Charcot, Pierre Marie, and Howard Henry Tooth.
Hunter’s Hope Foundation was established in 1997 by Pro Football Hall of Fame member and former Buffalo Bills Quarterback, Jim Kelly, and his wife, Jill, after their infant son, Hunter, was diagnosed with Krabbe Leukodystrophy, an inherited, fatal, nervous system disease. The Foundation is the Kelly's life long commitment to increase public awareness of leukodystrophies as well as to increase the likelihood of early detection and treatment. Their ultimate goal is to raise money to fund research efforts, identify new treatments, therapies, and a cure for Krabbe and other leukodystrophies.
The Neuromuscular Disease Center at the University of Rochester Medical Center offers state-of-the-art comprehensive care to over 4,500 patients affected by neuropathy, ALS, muscular dystrophy, myasthenia gravis, and other neuromuscular disorders. The Center strives to provide patients and their families with the tools, resources, and emotional support they need to understand and meet the challenges of their diseases so they can live their lives to the fullest. Physicians and scientists at the Center are actively involved in research to uncover the mysteries of these neuromuscular disorders and to develop new treatments.
Checks made out to Mark Farruggia Golden Benefit Charity Golf Classic can be sent to:
Mark Farruggia Golden Benefit Charity Golf Classic
P.O. Box 55
3446 Retsof Road
Retsof, New York 14539
If you have any questions contact us at 585-519-1917 or www.goldenbenefit.org. On behalf of the hundreds of families that Hunter’s Hope Foundation and Neuromuscular Disease Clinic at the University of Rochester Medical Center serves, thank you for your support.
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